Cahal's Move to California

Hi all,

My name is Cahal Neary. I have PKU and have recently moved to California.  I am 25 years old and living in San Diego, California.  I am originally from Greystones, Co. Wicklow. Although there is much to be said for the American health care system, (especially for people with PKU) there is a huge variety of food options available for order through your medical insurer. I have insurance with a company called Kaiser Permanent, which is part-subsidised through my job at Wells Fargo. They give me as much low protein food and Lophlex formula that I can possibly order for no charge (except for what I already pay for the service every month). In Ireland, the health coverage and monitoring of PKU is far better but the variety of low protein foods available in the US is far greater.

I know it is harder for Irish students to obtain a work visa for the US, but if there are any with PKU considering it please feel free to contact me through LowProteinConnect.ie. I have contact with some volunteer groups such as the California Coalition of PKU and Allied Disorders. They are a great group that hold family days and events and even helped me obtain formula for free before I was able to get it on my own! Cahal-Neary01 I hope some of this was useful. 

Cahal Neary

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