Karen’s Trip to New Zealand
Jon, Ciara (aged 3 with PKU) and I were
lucky enough to go to New Zealand for eight weeks. Jon was born in New Zealand
and it was Ciara’s first trip to meet her family there. As you can imagine,
planning a trip like that took a lot of organising and travelling abroad with a
child who has PKU takes even more organising . It was all well worth it though. Everyone we dealt with was so
helpful.

Before leaving we contacted the hospital in
New Zealand that looks after metabolic conditions. We found out what products
are available there. We ordered what we could get there and had them delivered
to Jon's mother’s house. Ciara's protein substitute is not available in NZ so Nutricia Metabolics were very kind and couriered over the powdered version of Amanix Junior for her. We brought the rest of the products she likes with us in our bags. We
divided them up between our 3 bags. In case we had any customs problems we had
a letter from Temple Street, kept everything in its original packaging and declared we had food
on arrival. Luckily enough we had the food split between the bags because one
of them was lost. It was returned to us a few days later but we were lucky we
didn't have all Ciara's food in that bag. The metabolic unit in NZ agreed to
test Ciara's blood over there so every week for the 8 weeks we posted the
bloods to them in Auckland for testing.
We flew with Malaysian airlines. It's a
long journey! Dublin to London then on to Kuala Lumpar (12hrs) where we stopped
for 2 nights. Then on to Auckland (11hrs) then on Jon's home town New Plymouth
(45mins + 3hr stop over). Malaysian airlines provided child vegetarian meals
which Ciara only picked at. She only ate some of the fruit and veg. They came
with pasta usually which she could not have had but did not want anyway. I brought with us on the plane plenty of
snacks and drinks. We had no problems
with any of the airport security about this but had a letter from Temple Street explaining why at hand just in case.
We didn't worry too much about how many exchanges Ciara had while we
were travelling, obviously we didn't give her anything she couldn't have and if
anything she had less exchanges than she is allowed.
We spent most of our time in NZ in Jon's
home town, staying with his mother, catching up with friends and family there.
We also did a road trip around NZ for 3 weeks visiting friends and family and
seeing some sights. We were so proud, showing Ciara off to everyone there! We
found similar products in supermarkets as here which were labelled with the
nutritional value. Although they did not have Ciara's favourite Spaghetti Hoops which
we missed a lot! Through the hospital in NZ we were put in contact with another
family who have a 2 year old with PKU. They live 5 hrs drive away from Jon's
home town but we visited them on our road trip. It was great to meet a family
living with PKU half way round the world and see how they get on.
We had a fabulous time and with help from
Nutricia Metabolics, Temple Street and the hospital in NZ Ciara's PKU was no hindrance at all!